Vatican City: Pope Leo XIV on Friday praised people living with amyotrophic lateral sclerosis, also known as ALS, saying their courage and faith teach the world the true value of life even in the midst of suffering and illness.
Pope made the remarks during a meeting at the Vatican with members of the Italian Association for Amyotrophic Lateral Sclerosis, known as AISLA. Addressing patients, family members, caregivers, volunteers and healthcare workers, he thanked them for their dedication and closeness to those suffering from the disease.
Pope Leo said people living with ALS become “prophets” for society because they show that the goodness and dignity of life are greater than sickness. He noted that many patients continue to live with commitment, faith and courage despite the serious challenges caused by the illness.
ALS is a progressive neurological disease that affects nerve cells controlling voluntary muscles. Over time, it can make movement, speech and breathing increasingly difficult. While there is currently no cure, AISLA supports patients and families through home care, scientific research, practical assistance and advocacy for patient rights across Italy.
Founded in 1983, AISLA has become one of Italy’s leading organisations supporting people affected by ALS. Pope Leo praised the association for building what he called an “alliance of closeness and proximity” among patients, relatives and caregivers.
Pope said this spirit of closeness reflects the example of Jesus, who approached those who suffered with compassion and personal care rather than remaining distant from them.
He also stressed that real healthcare is not only about medical knowledge or organisation but also about human presence. According to the Pope, true care must consider the biological, psychological and spiritual needs of every person.
“The Church deeply values this being close,” he said, while encouraging caregivers and volunteers to continue accompanying people during moments of pain and uncertainty.
Pope Leo also reflected on the deeper questions raised by suffering. He said pain often leads people to search for meaning in life and added that such questions should never be ignored.
Pope thanked AISLA volunteers for their generous service, describing their work as a response to what Pope Francis had often called a “culture of waste and death.” Through acts of solidarity and compassion, he said, they remind society that vulnerable people should never be abandoned.
Reflecting on the suffering of Christ during the Passion and the Way of the Cross, Pope Leo said Jesus Himself experienced physical pain and spiritual anguish. However, he said the Cross and Resurrection show that suffering does not have the final word.
“Pain and suffering cannot stop love or extinguish the power of God,” Pope said.
He encouraged Christians to remain people of hope who continue walking together without giving up during difficult times.
At the end of the meeting, Pope Leo entrusted ALS patients, their families and caregivers to the protection of the Virgin Mary and saints known for their care of the sick. He concluded by thanking AISLA members for their work and assured them of his prayers and blessing.